My name's Dan Jeffries and I have a lot going on in my life. I'm a published author, rare disease advocate, podcast creator, online learning developer AND a music producer too!
I'm looking to work with someone in the UK who can help me manage my social media output plus support in a couple of other areas.
Let me give you some background...
At 4 years old I was diagnosed with an ultra rare vascular condition called Wyburn Mason syndrome that would leave me blind in one eye by the age of 10. It affects around 1 in 50 million people. So it’s mega rare.
However, this didn’t stop me making the most of life. Excelled at school in theatre and drama (and I avoided contact sports. Bonus!). University was lots of fun and I started to grown as a DJ and music producer. Successful career as a music tutor until I turned 30…
…when I was diagnosed with a rare pituitary tumour.
Quite by chance, in 2007, medical students at the eye hospital (tasked to diagnose my other rare condition) also commented on various ‘unusual’ features: large hands, protruding jaw, rigged forehead. All of them observed that I may have a condition called ‘Acromegaly’: the benign growth of a tumour causing excessive release of growth hormones and a reduction of testosterone production.
Obviously this was quite a thing to hear! I ran out of hospital, Googled ‘acromegaly’ and knew that was what I had. 6 months later I was in hospital undergoing complex surgery.
A few years later, I was out having dinner, telling my rather crazy story. The table went quiet. One girl said “you should write a book!”. And the seed was sown.
In 2015 I published my memoir, Me Myself & Eye. It’s done really well (I think) for a book about a rare condition. It’s also opened some amazing doors for me too, including interviews, public speaking (paid!), radio and TV appearances, international conference invites and even trustee for one of the leading rare disease charities. It’s been a really fun ride.
And whilst doing all this, I’ve actively been pushing my music career. Since I was 12 I’ve been writing dance music, and I love it. I’ve had numerous releases on my own labels (and other) and lots of remix work too. This year I am paying to work with a manager who’s been getting me more exposure and opportunities. With that comes a social presence. And I have very mixed feelings about this (but I know it's worth too).
Oh and did I mention I'm also the Head of Digital Learning for a veterinary training company? So yeah, that takes up a fair whack of time too!
I don’t have kids.
***
Hopefully that gives you some sense of the scale of things. I need 3 of me, really. However, someone who can help with my cause will do until cloning becomes a thing.
Memoir/Book - Strategy for content sharing, e.g. - Audio clips (from the audio book) - Book snippets - Post events and news (This year = 10 year anniversary of publication)
Rare Disease - Sharing content from RD socials - Long form content - LinkedIn - AcroTales (podcast series I produce) - help coordinate recording schedule and promote
Music - Content strategy for IG and YT - Strategy plan for pre and post music release (lots of good guides out there) - YouTube videos (me in studio, live jams) - YouTube shorts - DJ sets from home (help with planning and promote)
So I’m looking for someone who can:
- help me schedule the content that I need to produce (AcroTales, videos, social clips) - create/share content on socials - help with long-form content ideas and writing - suggest things!
And as a bonus:
- spot opportunities - engage with pharma and other organisations for speaking opportunities (% share paid for helping source these!)
If you’re still reading, I hope you may still be interested! Drop me a message outlining how you may be able to help and past experience you've had. I am ideally looking for a single person to help with all the areas listed above. And due to the nature of this work, it's a UK only role.
Some sites: http://www.memyselfandeye.co.uk http://www.acrotales.com Spotify: https://open.spotify.com/playlist/2LZHn2lB3q2ehc659oxz7r
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